Episode 1: Our series is introduced by a panel of 4 people talking about the importance of “Pumping Up the Volume” so that people with lived experience will have their voices heard. Panellists include advocates for people with dementia and care partners, our research associate and a dementia educator.
Episode 2 of the Changing and Adapting series features an interview with Guy Chadsey whose spouse Alison has dementia. Guy talks about some of the early indications of Alison’s condition, his changing relationship with Alison and his effort to live positively.
Episode 4: Louise Milligan’s husband Gord was diagnosed with dementia while still teaching and raising two daughters. Louise speaks eloquently about the challenges their family faced and how she was able to use community resources to help.
Episode 5: Susan and her husband were looking forward to the perfect retirement until life interrupted. Susan describes how she reframed her experience and found ways to affirm her husband’s strengths, even as they diminished. In the process, she found new strengths within herself.
Episode 6: Too often people can drift away, but Penny Sather has not. As a member of a large extended family, Penny has helped the family out as they supported their mother and mother-in-law and now Penny is doing what she can to support her brother-in-law, Al.
This episode outlines the connection between human rights and dementia, with particular attention to the impact of COVID-19 on long term care. Mario is a dementia activist who is a co-creator of a Canadian Charter of Rights for Canadians with Dementia for the Alzheimer Society of Canada. Laura Tamblyn-Watts of CanAge is a lawyer and leading advocate for older people and Margaret Gillis leads the International Longevity Centre, Ottawa and is working to have Canada adopt the UN Convention on the Rights of Older Persons. Each gives their own advice on what listeners can do to promote human rights for people with dementia.
In this second episode on Human Rights and Dementia, we talk with Christine Telker a dementia activist from British Columbia and a member of Dementia Alliance International, a worldwide network of people with dementia. Jane Barratt leads the International Federation on Ageing and is working to advance a Convention on the Rights of Older Persons. Dr. Deb O’Connor teaches at UBC and helps us understand how human rights can be applied even when dementia has progressed. All three have some suggestions about what we can do to promote human rights and dementia. As well, mention is made of our Town Hall to be held June 29. More info can be found at dementiadialogue.ca.
In our third episode on this theme, we take a more global view of HUman Rights and Dementia. Stefanie Freel is a Canadian who is a consultant with the World Health Organization and lives in The Netherlands.Stefanie outlines work at the UN and WHO to codify and promote human rights for persons with mental disabilities, including dementia.
We then speak with Kate Swaffer who leads Dementia Alliance International whichis a worldwide group of people with dementia. Kate has secured a place at the table for people with dementia at several levels of dementia policy work.
In the last episode of our series on Human Rights and Dementia, listeners discuss the various Calls to Action issues by our interviewees. Mary Beth Wighton, a leading dementia activist and co-chair of Dementia Advocacy Canada and Jillian McConnel of the brainXchange co-host the discussion.