Dementia Dialogue
Season 4: Episode 49- Friendship

Season 4: Episode 49- Friendship

September 6, 2022

Lisa Loiselle speaks with Brenda Hounam and Colleen Whyte about friendship and dementia. Brenda was diagnosed with early onset dementia at age 53. She met Lisa in 2002 when they, and others planned the first ever conference by and for people living with dementia – A Changing Melody.

 Brenda and Lisa continue to work on many dementia advocacy initiatives and have formed a deep and meaningful relationship. The conversation includes the loss of friendships after a diagnosis, how participants in the study defined friends vs. acquaintances, leisure and how that helps people maintain friendships, how trust plays into relationships, and more.

Colleen Whyte is at Brock University. She and her colleagues, Darla Fortune (Concordia) and Rebecca Genoe (Regina) have studied friendship and dementia, published a number of articles, created a website and video vignettes. Brenda and Lisa have been working with them on a set of conversation tools.

Resources:

https://dementiaandfriendship.ca/

https://www.cbc.ca/listen/live-radio/1-66-the-morning-edition-sask/clip/15928672-university-regina-researcher-studies-maintaining-friendships-dementia-diagnosis

 

Summer Reprise #2 Marshalling Resources

Summer Reprise #2 Marshalling Resources

August 2, 2022

Our summer reprises focus on the theme of advocacy at the system, community service and individual level.  In this episode originally released in May 2018, Louise Milligan describes how her husband Gord was diagnosed with dementia while still teaching and raising two daughters. Louise speaks eloquently about the challenges their family faced and how she was able to use community resources to help. 

Summer Reprise  #1 - Human Rights and Dementia

Summer Reprise #1 - Human Rights and Dementia

July 12, 2022

Our summer reprises focus on the theme of advocacy at the system, community service and individual level.  This first episode released in May 2020  outlines the connection between human rights and dementia, with particular attention to the impact of COVID-19 on long-term care. Mario is a dementia activist who is a co-creator of a Canadian Charter of Rights for Canadians with Dementia for the Alzheimer Society of Canada. Laura Tamblyn-Watts of CanAge is a lawyer and leading advocate for older people and Margaret Gillis leads the International Longevity Centre, Ottawa and is working to have Canada adopt the UN Convention on the Rights of Older Persons. Each gives their own advice on what listeners can do to promote human rights for people with dementia.

Season 4, Episode 48: Young Onset Episode 4 - ”Have a Good Day,  Every Day”

Season 4, Episode 48: Young Onset Episode 4 - ”Have a Good Day, Every Day”

June 18, 2022

John and Cindy McCaffrey's motto is  “Have a good day, every day”. In this episode of our Young Onset Dementia series, guest host, Kathy Hickman of the brainXchange and Alzheimer Society of Ontario talks with them about their experiences of living with and caring for someone with young-onset dementia, how they have built a sense of community and continue to maintain a positive attitude by living in the moment.

John and Cindy discuss how they took action when they couldn’t find the “right” supports for someone living with young-onset dementia by creating a program called YouQuest. YouQuest focuses on providing intentional days for people living with young onset dementia based on providing real-life experiences, all guided by its participants.

Resources

YouQuest - https://youquest.ca/

Online Support Group for care partners of people with young-onset Dementia – Contact cindy@youquest.ca

Frontotemporal Dementia (FTD) Durham Support Group - https://m.facebook.com/groups/221301621683010

The Association for Frontotemporal Dementia - https://www.theaftd.org

brainXchange, Frontotemporal Dementia Resource Page - https://brainxchange.ca/Public/Resource-Centre-Topics-A-to-Z/Dementias-Rare-forms-of-/Frontotemporal-Dementia

Alzheimer Society of Canada, Young Onset Dementia - https://alzheimer.ca/en/about-dementia/other-types-dementia/young-onset-dementia

brainXchange, Young Onset Dementia Resource Page - https://brainxchange.ca/Public/Resource-Centre-Topics-A-to-Z/Young-Onset-Dementia

 

 

Episode 4: Les villages culturels

Episode 4: Les villages culturels

June 13, 2022

Nos invités pour cet épisode sont Véronique Legault et Pierre Roisné, respectivement Directrice générale du Regroupement des ainés de la Nouvelle-Écosse et Directeur général du Réseau santé Nouvelle-Écosse.

Véronique et Pierre collaborent depuis quelques années sur Villages culturels, un projet dont le but principal est d’identifier des méthodes, des approches et des activités culturelles qui pourraient être utilisées dans les centres de soins de longue durée en Nouvelle-Écosse afin de créer une atmosphère culturelle acadienne et francophone pour les résidents.

Ensemble nous avons parlé de la réalité de la communauté francophone et acadienne en Nouvelle-Écosse, des grands objectifs de leur projet et de leurs espoirs aussi pour les villages culturels.

Nous avons aussi demandé à Véronique de nous parler un peu de deux initiatives très intéressantes du Regroupement des ainés : lettres entre générations et cœur d’artiste!

Si vous aimez la musique, nous vous invitons à découvrir la chaine YouTube du Regroupement des ainés de la Nouvelle-Écosse.

Nous vous invitons également à visiter les sites Web du Regroupement des ainés de la Nouvelle-Écosse et du Réseau santé Nouvelle-Écosse pour plus d’information sur leurs services et ressources.

 

S’adapter pour mieux vivre!

S’adapter pour mieux vivre!

May 18, 2022

Notre invitée pour ce troisième épisode est Claire Giallonardo. Claire est native de Timmins, dans le nord de l’Ontario et habite maintenant dans la région de Peel. En 2014, alors qu’elle avait à peine 55 ans, Claire a reçu un diagnostic de Parkinson.

À la suite de ce diagnostic, Claire a dû repenser à son avenir et faire d’autres projets de vie; une période très difficile qu’elle qualifie de « traumatisante ». En contrepartie, cette période lui a aussi permis d’élargir son cercle social, de s’impliquer auprès de sa communauté et de renouer avec son amour des arts.

Claire et moi avons parlé de tout ça et bien plus encore dans le balado qui suit !

 

Cliquez sur ce lien pour lire le poème de Claire qui s’intitule « Faux cils, quelques-unes des toiles de Claire, et la biographie et photo de Claire  https://www.dementiadialogue.ca/podcast-3-biographies

 

 

Episode 46: Young-Onset Dementia: changing the narrative

Episode 46: Young-Onset Dementia: changing the narrative

May 3, 2022

Jill Czuczman a care partner to her husband David, living with Frontotemporal Dementia talks about some of the unique challenges associated with young-onset dementia from the long road to getting a diagnosis, to leaving the workforce early, the lack of understanding and stigma, to the struggles to find supports that meet the unique needs of those living with or caring for someone with dementia in mid-life. Facing these challenges head-on, Jill shares how she and David have made the choice to find the positive every day and the steps they have taken to live well with dementia, including getting involved in research and becoming advocates.

Resources

Frontotemporal Dementia (FTD) Durham Support Group - https://m.facebook.com/groups/221301621683010

The Association for Frontotemporal Dementia - https://www.theaftd.org

brainXchange, Frontotemporal Dementia Resource Page - https://brainxchange.ca/Public/Resource-Centre-Topics-A-to-Z/Dementias-Rare-forms-of-/Frontotemporal-Dementia

Alzheimer Society of Canada, Young Onset Dementia - https://alzheimer.ca/en/about-dementia/other-types-dementia/young-onset-dementia

brainXchange, Young Onset Dementia Resource Page - https://brainxchange.ca/Public/Resource-Centre-Topics-A-to-Z/Young-Onset-Dementia

Episode 45- Communication through improv- Arts 7

Episode 45- Communication through improv- Arts 7

April 19, 2022

A Toronto-based mental health clinician and artist specializing in aging, older age, and dementia, Aynsley Moorhouse elaborates on how the fundamental principles of theatre improv, such as saying “yes, and”, are also central to caregiving and communicating with people living with dementia. Improv teaches care partners about living in the now and supporting one’s partner by making them “look good”. She now works with care partners at the Reitman Centre using the principles of improv to connect with the people living with dementia they are supporting.

Resources:

CreateProgram_ReitmanCentre.jpg

Website: www.dementiacarers.ca

https://www.brainandlife.org/articles/how-improvisational-techniques-help-engage-dementia-patients/

https://www.psychologytoday.com/ca/blog/play-your-way-sane/202004/improvisations-benefits-people-dementia

Balado 2- Vivre le moment présent et profiter de la vie

Balado 2- Vivre le moment présent et profiter de la vie

April 12, 2022

Marie-Reine et André sont tous deux natifs du Caire, en Égypte. Ils ont émigré au Canada en 1970 et habitent dans la région d’Ottawa. C’est là qu’ils ont fait leur carrière et élevé leur famille.

Il y a environ trois ans, André a été diagnostiqué avec la maladie à corps de Lewy, une forme de trouble neurocognitif qui partage de nombreuses similitudes avec la maladie de Parkinson.

Lors de notre rencontre, nous avons parlé du diagnostic d’André, de l’impact de ce trouble neurocognitif sur leur vie et des efforts qu’ils font, chaque jour, pour rester actifs physiquement et intellectuellement, et profiter du moment présent.

Young Onset Dementia: One family’s story Pt. 2: the children’s perspectives

Young Onset Dementia: One family’s story Pt. 2: the children’s perspectives

March 29, 2022

Jillian McConnell, our guest host, speaks with the Dineen children: Justin, Rebecca, and Peter who were just 12, 10, and 8 at the time of their mom’s diagnosis (9 years ago), about their experiences as younger children learning about their mother’s bvFTD diagnosis and now as teenagers / young adults. They discuss the unique challenges they faced and offer perspectives and strategies that continue to help them as they navigate their mother’s diagnosis and their relationship with her.

Part 1  is a conversation with Matt Dineen, their father.  

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