October 26, 2020
Transitions– Looking Back and Looking Ahead
Jim Mann, a dementia activist from BC and Jacobi Elliott, PhD a researcher with the Geriatric Health Systems Research Group at UWaterloo both share a passion for improving the experience that Canadians have in our health care system. They reflect on the key themes that emerged in our conversations about The System Journey, including team support, treating the whole person, proactive families and support for GPs and offer their own insights for system improvement.
October 13, 2020
Dr. Ajantha Jayabarathan practices family medicine in Halifax NS. By adapting a shared care framework from mental health, Ajantha describes how she provides family-oriented dementia care in collaboration with other service providers. We get a glimpse of the comprehensive approach Ajantha strives for, though it is not always easy as service access or availability is often uneven. We also hear about the relationship that can build over time between a family physician and her patients, including their families.
September 27, 2020
Leanne Lawrence and Jean Daku live in rural Saskatchewan where Leanne’s mother, Marjory lived her whole life. We learn how Jean, a nurse practitioner, championed a memory clinic practice model within the Kipling Primary Care Centre and she and others supported Leanne and her mom as dementia developed. Enabling residents of rural areas to receive high-quality service is an important contribution of these types of clinics. Often services exist but the clinic helps organize and coordinate them and to advocate when gaps emerge.
September 21, 2020
Dementia, Stigma and Action – Human Rights
In this episode of our series on Human Rights and Dementia we listen to 3 women who are active in the struggle to overcome the stigma experienced by so many people with dementia and that often extends to their families. Alisa Grigorich reads an article that she and her colleague Pia Kontos recently wrote on “COVID-19, stigma- and the scandalous neglect of people living with dementia”. Phyllis Fehr, a dementia activist joins Pia in conversation about her experience of stigma and is working to combat it. Pia discusses a new project Reimaging Dementia that will mobilize people to pursue goals identified by individuals with dementia to improve their social and cultural well-being.
September 14, 2020
In Part 1, we heard from Rachel about her Mom’s growing dementia and of her need to move to long term care, despite her father Chris’ reluctance. We were also introduced to Monica and Cara who work at a MINT Memory Clinic supporting families like Rachel’s. Rachel reflects on her experience as a daughter of parents with dementia and some of her lessons learned while Monica and Cara discuss what their practice goals and challenges are.
August 29, 2020
Rachel Hofstetter’s parents, Chris and Dorothy Quick are living with dementia. Before they moved into the same long term care home at different times, Rachel recounts some of the challenges and transitions that they experienced. These challenges include decision-making, driving, admission into long term care, and working with multiple providers. Rachel received support from a MINT Memory Clinic. Monica Wood and Cara Dowhaniuk work at the memory clinic and along with Rachel, they describe how they support families like Rachel’s and collaborate with other primary care providers.
August 17, 2020
Learning what helps are available and how to use them is a major issue for people with dementia and care partners. One of the major issues in Primary Care is time. This is especially a challenge in caring for a patient with dementia. Michelle Janisse, MSW is a First Link coordinator who describes her role in working with families to navigate the system and with Primary Care to bolster their capacity to support people living with dementia. As service of the Alzheimer Society in many locations, First Link helps connect people to education and community resources. Listen to Michelle as she describes her role in helping people and health providers in Chatham-Kent, a mixed urban-rural area of southwestern Ontario.
August 4, 2020
Ron Roberts was diagnosed with Alzheimer Disease 5 years ago. Except for being told he had AD and could no longer drive, not much more information was provided to him. After doing his own research on how to maintain his health, among other things, Ron enrolled in the BA program at Kings College at Western University and plans to get his degree in 2021.
Ron also speaks to medical and social work students at Western and shares some of his message to students. As a Metis, Ron also briefly touches upon the experience of indigenous people. His core message is about the importance of listening and encouragement in a therapeutic conversation.
July 18, 2020
In Episode 1 of the System Journey, Ngozi Iroanyah recounts some of her father Felix’s experience with dementia, and how she as a daughter, along with her stepmother Gean and brothers Azu and Chuck, are supporting him. Ngozi shares some of her “techniques” in trying to keep connected to various health care providers and the family and to manage transitions that they all confront, as her dad’s dementia proceeds. Cultural awareness and communication as well as early action are all important considerations.
July 6, 2020
In the last episode of our series on Human Rights and Dementia, listeners discuss the various Calls to Action issues by our interviewees. Mary Beth Wighton, a leading dementia activist and co-chair of Dementia Advocacy Canada and Jillian McConnel of the brainXchange co-host the discussion.