Dementia Dialogue

Episode 46: Young-Onset Dementia: changing the narrative

May 3, 2022

Jill Czuczman a care partner to her husband David, living with Frontotemporal Dementia talks about some of the unique challenges associated with young-onset dementia from the long road to getting a diagnosis, to leaving the workforce early, the lack of understanding and stigma, to the struggles to find supports that meet the unique needs of those living with or caring for someone with dementia in mid-life. Facing these challenges head-on, Jill shares how she and David have made the choice to find the positive every day and the steps they have taken to live well with dementia, including getting involved in research and becoming advocates.


Frontotemporal Dementia (FTD) Durham Support Group -

The Association for Frontotemporal Dementia -

brainXchange, Frontotemporal Dementia Resource Page -

Alzheimer Society of Canada, Young Onset Dementia -

brainXchange, Young Onset Dementia Resource Page -

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