Check out www.dementiadialogue.ca Our podcasts feature people with dementia, their care/life partners, and supporters sharing experiences. They demonstrate their capacity to live fully and enable peer listeners to understand and gain insight and strengthen their adaptive skills. Episodes also enhance understanding within the broader community of what it means to live with dementia.
Episodes
Tuesday May 03, 2022
Tuesday May 03, 2022
Jill Czuczman a care partner to her husband David, living with Frontotemporal Dementia talks about some of the unique challenges associated with young-onset dementia from the long road to getting a diagnosis, to leaving the workforce early, the lack of understanding and stigma, to the struggles to find supports that meet the unique needs of those living with or caring for someone with dementia in mid-life. Facing these challenges head-on, Jill shares how she and David have made the choice to find the positive every day and the steps they have taken to live well with dementia, including getting involved in research and becoming advocates.
Resources
Frontotemporal Dementia (FTD) Durham Support Group - https://m.facebook.com/groups/221301621683010
The Association for Frontotemporal Dementia - https://www.theaftd.org
brainXchange, Frontotemporal Dementia Resource Page - https://brainxchange.ca/Public/Resource-Centre-Topics-A-to-Z/Dementias-Rare-forms-of-/Frontotemporal-Dementia
Alzheimer Society of Canada, Young Onset Dementia - https://alzheimer.ca/en/about-dementia/other-types-dementia/young-onset-dementia
brainXchange, Young Onset Dementia Resource Page - https://brainxchange.ca/Public/Resource-Centre-Topics-A-to-Z/Young-Onset-Dementia
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