Check out www.dementiadialogue.ca Our podcasts feature people with dementia, their care/life partners, and supporters sharing experiences. They demonstrate their capacity to live fully and enable peer listeners to understand and gain insight and strengthen their adaptive skills. Episodes also enhance understanding within the broader community of what it means to live with dementia.
Episodes
Sunday Mar 27, 2022
Sunday Mar 27, 2022
Our Young Onset series begins with a conversation between Matt Dineen, a father of three and husband from Ottawa, Ontario and Jillian McConnell, guest host and Knowledge Mobilization lead with brainXchange. Nine years ago, Matt's wife Lisa was diagnosed with Behavioural variant Fronto-temporal dementia (bvFTD) at the age of 43.
Matt and Jillian discuss what his experience has been like including: how Lisa was diagnosed, the challenges surrounding a diagnosis and symptoms at such an early age, how it impacted him, Lisa and their children (who were ages 12, 10 and 8 at the time) and what strategies and resources Matt found most helpful early on in Lisa's diagnosis and now, years later.
For more information:
- Association for Fronto-temporal degeneration: https://www.theaftd.org/
- AFTD support groups in Canada: https://www.theaftd.org/get-involved/in-your- state/canada/
- The Dementia Society of Ottawa and Renfrew County: https://dementiahelp.ca/
- ASO: https://alzheimer.ca/on/en
- ASC: https://alzheimer.ca/en
- brainXchange: https://brainxchange.ca/public/home
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